Home > Medicine > Medicine: general issues > Gift of Experience II: Conversations with Parents about Hemophilia
2%
Gift of Experience II: Conversations with Parents about Hemophilia

Gift of Experience II: Conversations with Parents about Hemophilia

          
5
4
3
2
1

International Edition


Premium quality
Premium quality
Bookswagon upholds the quality by delivering untarnished books. Quality, services and satisfaction are everything for us!
Easy Return
Easy return
Not satisfied with this product! Keep it in original condition and packaging to avail easy return policy.
Certified product
Certified product
First impression is the last impression! Address the book’s certification page, ISBN, publisher’s name, copyright page and print quality.
Secure Checkout
Secure checkout
Security at its finest! Login, browse, purchase and pay, every step is safe and secured.
Money back guarantee
Money-back guarantee:
It’s all about customers! For any kind of bad experience with the product, get your actual amount back after returning the product.
On time delivery
On-time delivery
At your doorstep on time! Get this book delivered without any delay.
Quantity:
Add to Wishlist

About the Book

The outlook for children with hemophilia keeps getting better. Treatments are safer, easier to administer and new, longer-acting products are becoming readily available. Specialists at comprehensive hemophilia centers all around the country offer innovative treatments while advancing national standards of care. Experts at these centers give patients and their families access to the latest clinical and research developments. By emphasizing the importance of early diagnosis and intervention to prevent complications, these specialists create an enormous impact on patients' health and long-term well-being. So it's safe to say that there is every reason in the world for parents of children who have been diagnosed with hemophilia to be hopeful about their child's future. Nevertheless, having a child with a chronic illness presents many challenges. There is much to learn, much to understand, a lot to teach and a new reality to adjust to. Concerns about bleeds, joint damage, inhibitors and pain are very real. We interviewed parents whose children are treated at the Boston Hemophilia Center about their experiences. In this book they share what it's been like to raise a child with hemophilia from birth to age 6. Through their stories, we appreciate that the journey from receiving an initial diagnosis to feeling capable and in control of the situation can take more than connecting with a team at a treatment center. Home care nurses, other families who have children with hemophilia and myriad of other resources all play important roles in a newly diagnosed family's capacity to cope. These families understand what it's like to have a child with hemophilia like no one else can. The guidance, understanding and practical tips they offer from their own experience are gifts to others who are embarking on this journey. In this book, you'll find excerpts of conversations with 19 parents (15 mothers and four fathers) of children with hemophilia A or B. The children have mild, moderate or severe hemophilia and come from a variety of backgrounds. Some parents knew that they might have an affected child, while it came as a complete surprise to others. Despite each family's particular challenges, they have all faced similar heartaches and struggles, made huge achievements and seen unanticipated rewards. This book is their gift to you.
About the Author: Laura Gray grew up in Newton, Massachusetts. She graduated from Boston University and got her Masters of Social Work at Smith College. She has worked at Boston Children's Hospital for the past 21 years and is currently the Projects Director at the Boston Hemophilia Center. Before that, she was a social worker for the adult and pediatric patients for 10 years. This her second "Gift of Experience" book. Allie Boutin was born in Mexico and moved to the Boston area in 1988 to earn her college degree. She received her B.S. in Computer Science and worked in high-tech and marketing industries for 18 years. Currently, Allie works for the Hemophilia Federation of America (HFA) as a Development Manager. Allie lives in North Andover, Massachusetts, with her husband and their two sons. Ziva Mann was born in Australia, grew up in New York and is currently raising a set of Yankee, Red Sox and Melbourne Swans fans in Massachusetts. She is the author of "Just A Boy", a book written for children with bleeding disorders, and the editor of a collection of essays written by fathers in the bleeding disorder community. She works on patient-centered design with Cambridge Health Alliance and Harvard's Center for Primary Care, helping primary care clinics partner with patients. Ziva lives in Newton, Massachusetts, with her husband and their two wonderfully improbable sons.


Best Sellers



Product Details
  • ISBN-13: 9781502339959
  • Publisher: Createspace Independent Publishing Platform
  • Publisher Imprint: Createspace Independent Publishing Platform
  • Height: 229 mm
  • No of Pages: 262
  • Series Title: English
  • Sub Title: Conversations with Parents about Hemophilia
  • Width: 152 mm
  • ISBN-10: 1502339951
  • Publisher Date: 10 Sep 2014
  • Binding: Paperback
  • Language: English
  • Returnable: N
  • Spine Width: 14 mm
  • Weight: 353 gr


Similar Products

How would you rate your experience shopping for books on Bookswagon?

Add Photo
Add Photo

Customer Reviews

REVIEWS           
Click Here To Be The First to Review this Product
Gift of Experience II: Conversations with Parents about Hemophilia
Createspace Independent Publishing Platform -
Gift of Experience II: Conversations with Parents about Hemophilia
Writing guidlines
We want to publish your review, so please:
  • keep your review on the product. Review's that defame author's character will be rejected.
  • Keep your review focused on the product.
  • Avoid writing about customer service. contact us instead if you have issue requiring immediate attention.
  • Refrain from mentioning competitors or the specific price you paid for the product.
  • Do not include any personally identifiable information, such as full names.

Gift of Experience II: Conversations with Parents about Hemophilia

Required fields are marked with *

Review Title*
Review
    Add Photo Add up to 6 photos
    Would you recommend this product to a friend?
    Tag this Book
    Read more
    Does your review contain spoilers?
    What type of reader best describes you?
    I agree to the terms & conditions
    You may receive emails regarding this submission. Any emails will include the ability to opt-out of future communications.

    CUSTOMER RATINGS AND REVIEWS AND QUESTIONS AND ANSWERS TERMS OF USE

    These Terms of Use govern your conduct associated with the Customer Ratings and Reviews and/or Questions and Answers service offered by Bookswagon (the "CRR Service").


    By submitting any content to Bookswagon, you guarantee that:
    • You are the sole author and owner of the intellectual property rights in the content;
    • All "moral rights" that you may have in such content have been voluntarily waived by you;
    • All content that you post is accurate;
    • You are at least 13 years old;
    • Use of the content you supply does not violate these Terms of Use and will not cause injury to any person or entity.
    You further agree that you may not submit any content:
    • That is known by you to be false, inaccurate or misleading;
    • That infringes any third party's copyright, patent, trademark, trade secret or other proprietary rights or rights of publicity or privacy;
    • That violates any law, statute, ordinance or regulation (including, but not limited to, those governing, consumer protection, unfair competition, anti-discrimination or false advertising);
    • That is, or may reasonably be considered to be, defamatory, libelous, hateful, racially or religiously biased or offensive, unlawfully threatening or unlawfully harassing to any individual, partnership or corporation;
    • For which you were compensated or granted any consideration by any unapproved third party;
    • That includes any information that references other websites, addresses, email addresses, contact information or phone numbers;
    • That contains any computer viruses, worms or other potentially damaging computer programs or files.
    You agree to indemnify and hold Bookswagon (and its officers, directors, agents, subsidiaries, joint ventures, employees and third-party service providers, including but not limited to Bazaarvoice, Inc.), harmless from all claims, demands, and damages (actual and consequential) of every kind and nature, known and unknown including reasonable attorneys' fees, arising out of a breach of your representations and warranties set forth above, or your violation of any law or the rights of a third party.


    For any content that you submit, you grant Bookswagon a perpetual, irrevocable, royalty-free, transferable right and license to use, copy, modify, delete in its entirety, adapt, publish, translate, create derivative works from and/or sell, transfer, and/or distribute such content and/or incorporate such content into any form, medium or technology throughout the world without compensation to you. Additionally,  Bookswagon may transfer or share any personal information that you submit with its third-party service providers, including but not limited to Bazaarvoice, Inc. in accordance with  Privacy Policy


    All content that you submit may be used at Bookswagon's sole discretion. Bookswagon reserves the right to change, condense, withhold publication, remove or delete any content on Bookswagon's website that Bookswagon deems, in its sole discretion, to violate the content guidelines or any other provision of these Terms of Use.  Bookswagon does not guarantee that you will have any recourse through Bookswagon to edit or delete any content you have submitted. Ratings and written comments are generally posted within two to four business days. However, Bookswagon reserves the right to remove or to refuse to post any submission to the extent authorized by law. You acknowledge that you, not Bookswagon, are responsible for the contents of your submission. None of the content that you submit shall be subject to any obligation of confidence on the part of Bookswagon, its agents, subsidiaries, affiliates, partners or third party service providers (including but not limited to Bazaarvoice, Inc.)and their respective directors, officers and employees.

    Accept

    New Arrivals



    Inspired by your browsing history


    Your review has been submitted!

    You've already reviewed this product!