Kyle BryantDiagnosed with a debilitating disease called Friedreich's ataxia (FA) at age seventeen, Kyle Bryant set off across the country to raise awareness. Today, he is the founder and director of rideATAXIA, a fundraising program of the Friedreich's Ataxia Rsearch Alliance (FARA), which welcomes thousands of participants who raise 1 million dollars for research every year. As the public face of FA and spokesperson for FARA, Kyle is in the vanguard of individuals who lend their passionate voices to the rare disease community. As he struggles to manage his own declining health and keep the FA research torch burning for a cure, his one-to-one grassroots efforts provide hope for recently diagnosed patients and those well into their journey, inspiring and coaching them toward the finish line. Kyle lives outside of Philadelphia, which is the base of operations for FARA, where he rides his beloved recumbent trike throughout the year. Read More Read Less